LETTERS TO THE EDITOR: Great article on Jack’s

To the editor:

What a great story about China General aka Jack’s. I grew up a few doors down and spent at least a few minutes every day picking a handful of the scrumptious sticks of Jolly Ranchers! Danny often made me an Italian for my lunch. Kim, Pat, and Ann had the biggest most genuine smiles each time anyone walked in. The crew there was a family, everyone could feel that! Jack’s was known for the best meats anywhere around. One could barely fit through every early morning when the men’s “coffee club” was in session.

Jack’s is the last place I remember being able to run a tab. Halloween in the village was a huge deal and Jack’s always gave a bag of chips and soda. The store was the heart of the community when I grew up. Jack’s, the post office, the library, and the church, made my childhood the stuff story books tales are made of. Great people everywhere.

It was a sad day when the new owners changed staff, didn’t sell gas, and finally infested the town with rats. Certainly not the business family the Sylvester family was. So sad to see the run down shamble left behind.

I feel blessed to have grown up in China before everything went downhill. And to everyone who treated me so well, I haven’t forgotten and never will.

Danielle Foster
former China resident

TRASH TALKING — China and Palermo residents: second alert

by Irene Belanger

Effective March 1, 2019, and until further notice, we will not be recycling any plastic bags so there will not be a barrel at the recycling station for them. They will go into the hopper. Of course, they could be reused as wastebasket liners or other trash and then tossed in with the regular trash. Thank you for your co-operation. The good work you all do is very much appreciated and does not go unnoticed.

Also: there is a rumor out there that “Springtime is on the way”!

Keep watch in The Town Line or check on the China town office website for a date for the KSO drug drop, roadside cleanup weekend and whatever else we can come up with for spring cleaning to make life a little easier and help to keep China, Palermo and Maine roadsides nicer for all of us.

NOTICE: For safety and health reasons PLEASE DO NOT toss any medicines into the flush.

Please contact Irene 445-2349, Sheldon 445-2712, or the town office to volunteer. (Thank you to China Boy Scout Troop and their leaders as they help us each year.)

Just so you know, we are scheduled to send our first load of trash to Fiberight/Coastal in June 2019. It’s been very exciting to watch the new facility grow in Hampden. If they offer another tour and you’d like to go see the progress call me. It’s massive!

Thank you to our Transfer Station attendants. They take the extra time and energy to get training to keep up with whatever is happening in the wonderful world of trash as well as all safety sessions to keep themselves and all of us safe.

Debunking the myths about donating bone marrow

The National Marrow Donor Program has published information on the BeTheMatch.org website to dispel the misinformation concerning marrow donation. The following information are excerpts from their site to correct the myths that may be holding back potential donors from registering.

Chance Cunningham, a young boy from the town of China,  who was recently the recipient of a bone marrow transplant.

Myth #1: Bone Marrow Donation Requires Surgery.

Three out of four donations are made through a nonsurgical technique called PBSC, peripheral blood stem cell donation. This technique removes the blood-forming cells from the donor’s blood through a needle in the donor’s arm much like a regular blood donation procedure.

Myth #2: Pieces of Bone are Removed.

This is never the case. Donors only provide the liquid marrow which is taken from the pelvic bone.

Myth #3: Donating Bone Marrow is Painful.

In the 25 percent of cases for which surgery is required, the donor is put under general anesthesia and feels no pain. Donors generally return home the same day and go back to their usual routine within a week.

Myth #4: Donating Bone Marrow is Bad for the Donor’s Heath.

Less than five percent of the donor’s marrow is removed, which is not enough to cause any health problems. These cells replace themselves in four to six weeks.

Myth #5: Donating is Costly to the Donor.

Bone Marrow donors do not pay to donate. The National Marrow Donor Program pays for the donor’s travel cost.

Myth #6: The Need for Bone Marrow Donors is Declining

Annually, more than 10,000 Americans are diagnosed with life-threatening diseases, such as leukemia or lymphoma, for which the only cure is a bone marrow transplant. Their lives literally depend on finding suitable donor matches before it is too late.

Obituaries for Thursday, March 7, 2019

LULA “SALLY” BROTHERTON

SOUTH CHINA – Lula Ruth “Sally” Brotherton, of South China, born in Prague, Oklahoma, passed away peacefully in her home the morning of February 15, 2019. She was the middle child of Martin Joyce Sweet and Lawrence Clyde Curry.

Sally often times said she was naturally inclined to being both sweet and spicey.

From her earliest youth, Sally was passionate about environmental, peace and social justice issues. Every person is valuable and worthy of love and kindness. She was a candy striper in her early teens which eventually turned into a rich career in community and mental health services.

At the end of Sally’s life her affiliations included the Augusta Area Non-Violence Com­munication practice group, Augusta Brain Injury Support group, Augusta Area Women in Black (which holds a long standing peace vigil in front of the Lithgow Library on Fridays 12:30 – 1 p.m. All are invited,) and the NAACP.

Sally cherished her children and grandchildren.

Sally is survived by her daughters Michael Nicole Whitman, of Norridgewock, and Stephannie Dawn Estes, of Vassalboro; grandchildren, Dakota Autumn Estes, Savannah Rayne Estes, Charlie Joesphine Allen, all of Vassalboro, Robert Jacob Conlogue, of Palermo; brothers Lawrence Clyde Curry, of Albuquerque, New Mexico, and Charles Paul Curry, of Richmond, Virginia.

Memories and condolences may be shared with the family online at www.directcremationofmaine.com.

BRENDA J. ALBEE

VASSALBORO – Brenda Jane Albee, 77, died Sunday, February 17, 2019, at Mt. Saint Joseph nursing home, in Waterville. Brenda was born April 19, 1941, in Norridgewock.

She attended Skowhegan area high school and went on to attend college at Westbrook College where she graduated with a bachelor degree. Brenda worked as a social worker for some time as well as a teacher in Skowhegan. She, along with her life-time partner Peggy, owned and operated Albany’s Hyde Away billiard lounge in Augusta.

Brenda lived mostly in Maine and was a member of the Fraternal Order of Eagles Auxillary since 1973. She was also a member of the Eastern Star.

Brenda resided in Florida for a few years where she and her partner owned and operated a wood crafting business called Mainely Small Stuff until retiring back home in Maine.

Brenda was an avid reader with special interest in Stephen King. It was a rare thing to see her without a book in her hand. Brenda also had an amazing green thumb and could make anything grow and flourish. She loved to garden and would spend countless hours tending to her gardens. Brenda enjoyed barbecues with family, traveling with her partner and good conversation.

Brenda will be remembered by those who loved her for her unfiltered honesty, her fiery personality, her creativity and her never give up attitude. Brenda was a strong thinking, intelligent, independent woman. She didn’t believe in waiting for others to help get things done and if there was a job to do, she dove in and got it done herself.

Brenda was predeceased by her parents, Ervin and Dorothy Moody; and her son, Steve Albee.

Brenda is survived by her life-time partner Peggy Hyde, of Vassalboro; her son Scott Albee, of Norridgewock; her brother Stanton Moody, of Augusta; two stepdaughters, Mario Chavarie and her husband Raymond, of South China, and Marni Gwazdosky and her husband Terry, of Clinton; four stepgrandchildren, Britney (Gwazdosky) Marston and her husband Josh, of Vassalboro, Nicholas Chavarie, Kyle Gwazdosky, Kelsey Gwazdosky; and a step greatgranddaughter, Kimberlee Marston.

There will be a private celebration of life for the family on Brenda’s birthday in April.

The family encourages those who wish to pay their respects in lieu of flowers to please donate to the Alzheimer’s Association.

VIVIAN R. FIELD

FAIRFIELD – Vivian R. Field, 99, of Fairfield, died Tuesday, February 19, 2019. She was born in the family home in Bryant Pond on August 4, 1919, the daughter of the late Frederick and Delia (Berryment) Noyes.

She was educated in Bryant Pond and graduated from Woodstock High School in 1937. She then went on to study at The Maine Eye & Ear Infirmary, in their nursing program, in Portland.

Vivian married Clinton E. Field on March 15, 1941, and they settled in Oxford to raise their three children. They spent 41 wonderful years together until he passed in 1987. They loved to travel, especially to New York, Georgia and throughout New England camping at different locations.

Vivian worked in woolen mills as a spooler, starting at Robinson Mill in Oxford, and then went to work at mills in Old Town and Clinton where she retired in her early 60s.

Vivian was a Girl Scout leader and a 4-H leader, in her younger years. She was an avid knitter, making many sweaters, hats, scarfs, and afghans for family and friends. She also was an avid reader and enjoyed her daily crossword puzzles. She was also an avid Red Sox fan. Vivian was awarded the Boston Post Cane in 2017, this strategic award is presented to the eldest resident in Fairfield.

Vivian was predeceased by a son-in-law, Donald Murphy Sr.; a brother, Frederick Noyes; and a sister, Mildred York.

She is survived by her three children, Coral Murphy, of Poland, Cecilia (Will) Guertin, of Fairfield, and Clinton (Lisa) Field Jr., of Florida; six grandchildren; two step-grandchildren; 10 great-grandchildren; three great-step-grandchildren; and two great-great-grandchildren.

You are invited to offer condolences and pay tribute to Vivian’s life by visiting her guestbook at www.thefortingroupauburn.com.

A graveside service will be held in the spring at Pinegrove Cemetery, in Poland. Arrangements are under the care of The Fortin Group/Plummer & Merrill Funeral Home, Cremation & Monument Services, 217 Turner St., Auburn, 783-8545.

Those wishing to make a memorial donation may do so to: The American Heart Association, 7272 Greenville Avenue, Dallas, TX 75231 or The MaineGeneral Homecare & Hospice, 10 Water St., Waterville ME 04901.

MERVIN C. GREENE SR.

FAIRFIELD – Mervin C. Greene Sr., 87, passed away at his home on Thursday, February 21, 2019. He was born in Canaan on November 25, 1931, to the late James and Iva Greene.

Mervin worked for the town of Fairfield as a heavy equipment operator and then for Keyes Fibre, in Shawmut, as a crane operator until his retirement.

Mervin enjoyed hunting, fishing, camping and spending time with his family and his little companion Cubby. Mervin was a jack of all trades and could fix anything. He had a special love for clocks, whether they were new or old.

He was predeceased by his wife of 64 years, Nancy; father James,; Mother Iva; brothers, Harvey and Ermile; sisters, Hilda and Vivian; daughter Jane Shorey; and grandson Shawn Shorey.

Mervin is survived by his children, Jean Morang and husband Roland, Susan Clark and husband George, Mervin Jr, and wife Dottie, James and wife Debbie, Sharon, Hawley and wife Debbie, and Trudy and fiancé Ronney; 19 grandchildren; 37 great-grandchildren; and three great-great-grandchildren.

An online guestbook may be signed and memories shared at www.familyfirstfuneralhomes.com.

Arrangements are by Lawry Brothers Funeral Home & Cremation Care, 107 Main St., Fairfield.

ANNE L. DUVAL

WINSLOW – Anne L. (Letourneau) Duval, 77, died on Friday, February 22, 2019, at Oak Grove Center, in Waterville, following a short and unexpected illness. She was born in Fairfield in July 1941, the daughter of Amedee and Marie Letourneau.

She graduated from Lawrence High School, in Fairfield, in 1959. She married Raymond N. Duval on March 25, 1961, and traveled with him to various overseas assignments during their first 15 years of marriage, while Raymond was active duty in the USAF Security Service. During this time, Anne and Raymond’s son and daughter were born. After Anne and her family returned to Maine in February 1977, she attended some classes at Thomas College, in Waterville.

Anne was employed in clerical and payroll office positions while living at a couple of the overseas assignments and at Hathaway Shirt Factory, in Waterville, while Raymond was serving a remote tour from 1971-1972. Following her return to Maine in 1977, she worked in the Trust Department at the Waterville Federal Trust Company for 18 months.

After this she worked over 15 years at the Skowhegan S.D. Warren Company/Scott Paper Mill in the accounting and customer service departments before accepting an early retirement in 1995. She continued working for another 10 years in the accounting office of the Fairfield Plum Creek Timber Company before retiring in 2005.

Anne was a member of the Immaculate Heart of Mary, Notre Dame and Saint John parishes. which are now called Corpus Christi Parish, for 18 months; she was an active volunteer in the Saint John Parish office and the Waterville church office during 2006 and 2007.

She was a life-long member of the Winslow VFW Auxiliary Post #8835 and was a member of the Waterville American Legion Auxiliary Post #5.

Her father and mother predeceased her.

In addition to her husband Raymond, Anne is survived by her two children, Derek Duval, of Boise, Idaho, and Cherri Duval, of Gulf Breeze, Florida.

She is also survived by her sister Rosaree Dubay, of Orono; two brothers, Jules Letourneau and wife Gaile, of Shawmut, and Joseph Letourneau and wife Jacky, of Stuart, Florida; plus several nieces and nephews and other family members.

A Mass of Christian Burial will be celebrated at 11 a.m., on Saturday, March 16, 2019, at the Notre Dame Catholic Church, 116 Silver Street, Waterville. A reception will follow. Burial will be 10 a.m., Monday, March 18, 2019, at the Maine Veterans Memorial Cemetery, 163 Mount Vernon Road, Augusta.

An online guestbook may be signed, condolences and memories shared at www.gallantfh.com.

In lieu of flowers, friends wishing may make donations in Anne’s memory to: St. John Regional Catholic School, 15 South Garand St., Winslow ME 04901.

CAROL J. ROUX

SHAWMUT – Carol J. Roux, 81, passed away Friday, February 22, 2019, at Oak Grove Center, in Waterville,. She was born January 22, 1938, in Waterville, the daughter of Charles and Lottie (Ferland) King.

She worked for over 40 years at C. F. Hathaway shirt manufacturing company, in Waterville, until her retirement in May 2000. She was active in Local #486 Union and was vice president of the Central Maine Labor Council.

She was married to Erland Roux for 48 years until his death in November 2008. Carol enjoyed doing search a word puzzles, watching the Red Sox, Patriots and Celtics. She was a democrat and loved the politics of Barack Obama.

Carol is survived by son, Timothy Roux and wife Veronica, of Belgrade; grandson, T.J., of Auburn; and great-grandsons, Jeremy, and Jackson, her sister Norma Grenier and husband Ross, all of Mapleton; her niece Cindy Batey and husband Gary, of Fairfield Center; many nieces and nephews.

She was predeceased by her parents, Charles and Lottie King; her sisters Lorraine Booth, Beverly Trionfante, and Patricia Michaud.

A memorial service will be held at a later date at the Maine Veterans Cemetery in Augusta.

In lieu of flowers, friends wishing may make donations in Carol’s memory to the Humane Society Waterville Area, 100 Webb Road, Waterville, ME 04976.

Arrangements under the direction and care of Dan & Scott’s Cremation & Funeral Service, 445 Waterville Road, Skowhegan, ME 04976.

DORIS T. CUMMINGS

OAKLAND – Doris T. Cummings passed away at Oak Grove Nursing home following a long struggle with illness, Saturday, February 23, 2019. She was born December 21, 1934, in Waterville, the daughter of Edna and Frank Lebreck.

She was educated in Oakland schools, was employed at Norridgewock Shoe and later, until retirement, Cascade Woolen Mill, in Oakland. She then had time to babysit her nieces, Sam, Ashley and Melissa. She enjoyed coloring, crossword puzzles, bingo and loved lawn sales and music. She always helped others before herself. She was a loving sibling, mother, aunt, grandmother and great-grandmother.

She was predeceased by her three brothers, Albert, Wilford, and Clyde; two nephews, Allen and John Kelly.

Doris is survived by her sister, Shirley Kelly and husband, Alfred, of Oakland, their daughter, Sandra Macdonald; sister-in-law, Beverly White and her daughter, Linda; two children, Theresa and Clarence; seven grandchildren, Danielle, Steven, Aaron, Anthony, Joey, Daniel, and Wesley; six great-grandchildren, Ashley, Mariah, Chantelle, Mackenzie, Zachery and Harmony; one great-great-granddaughter, Kinsley Mae.

A private service for family will be held at a later date. She was laid to rest in Lewis Cemetery, Oakland.

Arrangements were under the care of Mid Maine Cremation, 107 Main St., Fairfield.

BARBARA A. HAGAN

WINDSOR – Barbara Anne Hagan, 83, passed on Sunday, February 24, 2019. She was born June 16, 1935, to Barbara Coltunick and George Dodge, Sr., in Providence, Rhode Island.

Barbara worked many years traveling the country designing, installing and programming computers. Her travels brought her to Maine where she fell in love with the state and its people. She met the love of her life, Richard “Dick” Hagan and they were married. The couple purchased their home in Windsor and quickly became a beloved part of their community.

Barbara set up Barbara’s Barn at her home in Windsor where she taught craft classes and sold miniature doll houses. Barbara was a proud member of the Whitefield Lioness Club, Eastern Star, Windsor Historical Society and the Ladies Aid.

Burial will be in the spring at the Resthaven Cemetery in Windsor.

In lieu of flowers, donations may be made in Barbara’s name to help with final expenses to Jody Ray, 346 Coopers Mills Road, Windsor, ME 04363.

Arrangements are entrusted to Hall’s of Waldoboro, 949 Main Street, Waldoboro. Condolences may be shared at www.hallfuneralhomes.com.

OTHERS DEPARTED

THOMAS J. SEAMON, 38, of Starks, passed away on Monday, February 11, 2019. Locally, he is survived by his children, Jealyn and Owen Seamon, and their mother, Holly Morgan, of China.

ERNEST PONTBRIAND, 91, of Waterville, passed away on Tuesday, February 19, 2019, at Mount Saint Joseph, in Waterville. Locally, he is survived by his daughter, Marcia Anderson and her husband Craig, of South China.

SHIRLEY G. CROCKER, 70, of Monmouth, passed away on Monday, February 18, 2019, at her home. Locally, she is survived by a son, Glen Crocker and wife Michelle, of Windsor.

LEON L. BISSON, 87, of Port Charlotte, Florida, formerly of Waterville, passed away on Tuesday, February 19, 2019, in Port Charlotte. Locally, he is survived by his wife Martha, of Waterville; children, Bruce Bisson and wife Alison, of Oakland, Dennis Ames and wife Dory, of Clinton, Carolee Bisson, of Belgrade, and Kelly Nichols and husband Bob, of Skowhegan; grandson Blake Bisson and wife Kassandra, of Belgrade.

Declining enrollment could limit gains in state school subsidy

Vassalboro Community School. (source: jmg.org)

by Mary Grow

Vassalboro School Board members continued work on their 2019-2020 budget request at a special March 4 meeting, despite still lacking major figures.

Board members do not yet know what the state subsidy for schools will be this year, as state legislators consider which of several options they can afford. Superintendent Alan Pfeiffer said since the subsidy is based on the number of students, Vassalboro’s continued slow decline in school population will limit gains if legislators approve a higher subsidy.

Also uncertain is the amount needed for high-school tuition. Pfeiffer expects the amount will be around $3 million, a substantial part of the total budget. Last year Vassalboro’s school budget was about $7.7 million.

Smaller unknowns as of March 4 were insurance costs and prices for heating oil and bus fuel.

Pfeiffer pointed out that if the legislature increases the minimum wage, school spending is likely to be affected. Other legislature proposals could also change state or local school spending.

A pending local change is that the grant funding the pre-kindergarten program at Vassalboro Community School ends this year. School officials intend to continue the program, using money left over from the current year and anticipated state reimbursement.

Lacking major numbers, board members and school officials discussed smaller items, like Principal Megan Allen’s offer of about $8,300 reductions in new teaching-related expenditures.

Board Chairman Kevin Levasseur estimated that only about 30 percent of the school budget is subject to the board’s and voters’ discretion; the rest is fixed by contracts or necessity. He anticipates an increase in the total budget, no matter how closely board members study it.

The board’s next meeting is scheduled for Tuesday evening, March 19. A joint meeting of the School Board and Budget Committee is tentatively scheduled for Tuesday evening, March 26, at the school.

Planners give thumbs up to school gym expansion

photo source: JMG.org

by Mary Grow

China Planning Board members have unanimously approved an enlargement of the China Middle School gymnasium. RSU (Regional School Unit) #18 Superintendent Carl Gartley said he hopes work will start as soon as school ends in June and be mostly done when school reopens in September, though it might run into October.

At the Feb. 26 China Planning Board meeting, Gartley, engineer Blaine Buck, of Cordjia Capital Projects Group, and architect Mike Sealander, of Sealander Architects, presented project plans.

The addition will be on the west side of the gym, toward Lakeview Drive. It will run the length of the existing building, about 86 feet, and extend the building west about 26 feet. Sealander said it will cover the existing grass strip, but will not affect parking; the existing sidewalk will probably be “chewed up during construction,” but it will be replaced.

The new space will house a new stage, two teachers’ offices and a practice room, plus a storage room and under-the-stage chair storage. There will be room for bleachers in front of the new stage.

The present stage and related rooms will become boys’ and girls’ locker rooms and provide additional bathrooms and a shower that Sealander sees being welcomed by referees.

Gartley said the middle school building is slated for additional work as separate projects, including providing LED lighting indoors and outdoors, repairing the roof and updating the air handling system. Funding will come from the RSU #18 bond issue voters approved in 2018, he said.

Planning board members decided they did not need to hold a public hearing before acting on the application. Gartley commented that redoing the gym has been discussed informally in town for many years, and Board Chairman Tom Miragliuolo observed that there was no audience at the board meeting.

Review of the ordinance criteria found the project meets all of them. Codes Officer Paul Mitnik said he is satisfied it also meets requirements of China’s Phosphorus Control Ordinance.

The next planning board meeting is scheduled for Tuesday evening, March 26, unless Mitnik receives one or more applications (he does not anticipate any) in time to schedule a March 12 meeting.

Selectmen OK two TIF board recommendations

by Mary Grow

At their March 4 meeting, China selectmen unanimously approved two Feb. 25 recommendations from the TIF (Tax Increment Finance) Committee. They authorized Town Manager Dennis Heath to negotiate with Susan Bailey to buy her small piece of land across Causeway Street from the boat landing, and to pay a bill from Comprehensive Land Technologies for the new bridge west of the boat landing.

The Bailey lot is currently used for boaters’ parking; voters approved buying it to continue the use. Heath said the causeway project account still has more than $75,000 to complete the bridge work, including a final paving coat and changes to guardrails.

Another decision selectman made was to approve Heath’s recommendation that the town clerk be designated as the town manager’s alternate should he be out of town or otherwise unable to transact daily business. When Selectman Jeffrey LaVerdiere worried that a hypothetical future town clerk might be less trusted than Rebecca Hapgood, Heath reminded the board that they choose the clerk.

In other business, Heath told board members he has ordered new chairs for them, since the current ones are at least 10 years old, and a larger screen and new projector for the meeting room. Selectman Ronald Breton’s request for a new table, round or perhaps V-shaped so board members could see each other more easily, was discussed, but no action was taken.

Breton proposed another idea that was discussed without action: recommending a town ban on plastic bags, because so many other Maine municipalities are doing so.

LaVerdiere, who owns a retail store outside China Village, opposed a ban; it would increase prices, he said, because alternatives are more expensive. He said he reuses plastic bags as long as they last and commented that when he helps with roadside clean-ups he sees fewer than in the past.

Board Chairman Robert MacFarland said if retail-size plastic bags are banned, garbage bags should be, too: “They’re made out of plastic, and they’re four times as big.” His comment sparked a brief non-serious discussion of other plastic items that could be included in any ban.

The next regular China selectmen’s meeting is currently scheduled for Monday evening, March 18.

A mother’s instinct gives her son the chance he needed

Lacey and Chance Cunningham

by Jeanne Marquis

A local toddler, Chance Cunningham, from China, received a successful bone marrow transplant in Boston, Massachusetts, to fight a rare disorder of his immune system, Hemophagocytic Lymphohistiocytosis, or HLH. Chance and his parents Lacey and Jeremy Cunningham returned home on the weekend of March 2, following a long, emotional stay in Boston.

Lacey and Jeremy Cunningham with son Chance prior to his illness. (Contributed photo)

Lacey’s strong mothering instinct led to the early diagnosis of her young son’s HLH. She knew what he was experiencing was more than the typical childhood illness when Chance’s fever wouldn’t break and she felt hardening around his stomach area. Mothers know when something is wrong. What she didn’t know at the time was just how serious this illness could be until she and her husband Jeremy arrived at the Boston Children’s Hospital. It became real when a staff member told Lacey, “It’s very hard for parents of chronically ill children.” She said, “I was taken aback, like whoa, my son, my baby is considered to be chronically ill.”

Left unchecked, the ailing immune system becomes overactive and attacks healthy organs and tissues. The treatment for HLH is to literally rebuild the immune system. The existing immune system needs to be inactivated by chemotherapy and replaced by a bone marrow transplant from a compatible and healthy donor.

The search for an appropriate bone marrow donor is more challenging than one would think. You might assume that family members are the best match. However, according to the Health Resources and Services Administration, only 30 percent of patients have a relative that is a suitable match and able to donate. The other 70 percent, nearly 12,000 people in the US, depend on a worldwide registry of bone marrow donors for this lifesaving transplant.

Chance Cunningham

Chance’s donor came all the way from Germany. There is a desperate shortage of bone marrow donors in the U.S. On average 3,000 Americans die every year waiting for transplants, while only two percent of our population is listed on the registry for bone marrow donors. Bone marrow transplants are the only cure for HLH, the disease Chance is fighting, and other diseases such as Leukemia, the most common childhood cancer.

When Lacey was interviewed for this article, she asked us to focus more on the need for bone marrow donors than her own story because it is the only cure for many people like her son Chance. There is no alternative. She urges people to list themselves on the national registry for bone marrow transplants. She and her husband Jeremy are extremely thankful for the woman in Germany who donated her marrow. They are grateful for her physical donation of life-saving cells and also for her unfailing time commitment. The donor remained dedicated to the protocol even when the procedure was postponed three times due to Chance’s battle with HLH flare ups.

The National Marrow Donor Program (NMDP) is a nonprofit organization established in 1986 and operates the Be The Match Registry, the world’s largest hematopoietic cell registry. Large numbers of registered donors are needed, especially from ethnic populations, because the odds that two individuals are HLA matched are one in 20,000. The success of a donor match depends on a registry with a large number of participants. To register as a donor, visit BeTheMatch.org and answer a questionnaire. If you are a candidate to be a donor, you will be sent a cheek swab kit in the mail.

The family of Chance Cunningham has set up a GoFundMe account to help with medical expenses at www.gofundme.com/big-cheers-for-little-chance-cunningham.

See also: Debunking the myths about donating bone marrow